Clinical Research
- Determinants of Susceptibility and Severity in Systemic Onset Juvenile Rheumatoid Arthritis
This study is evaluating clinical and laboratory findings of patients with systemic onset JRA and determining if there are certain criteria which will help guide with management, treatment, and prognosis.
Primary Investigators: Christy Sandborg, Tzielan Lee, and Elizabeth Mellins
Contact: Tzielan Lee - Enhanced Drug Safety Surveillance Study
This multicenter study examines adverse events in patients in the pediatric rheumatology community on biologic medications.
Primary Investigators: Joyce Hsu
Contact: Joyce Hsu - Family Study of Autoimmunity
This study looks at how microchimeric cells (cells that travel during pregnancy between the mom and baby) are involved in autoimmune diseases.
Primary Investigators: Tzielan Lee and Christy Sandborg
Contact: Tzielan Lee - A Registry for Children with Vasculitis: E-entry (ARChiVE)
This is a multicenter database registry for childhood vasculitis in the US and Canada.
Primary Investigators: Tzielan Lee and Christy Sandborg
Contact: Tzielan Lee - Neonatal Lenticulostriate Vasculopathy and Maternal Markers
This is a prospective study evaluating maternal immune markers and long term neurodevelopmental follow up on infants with lenticulostriate vasculopathy.
Primary Investigators: Jennifer Frankovich, Gary Show, and Christy Sandborg - Phase II: Living Profiles: Transmedia Personal Health Record Systems for Young Adults
Living Profiles: Common platform component development
This project focuses on developing a personal health record application for teenagers with chronic disease.
Primary Investigators: Christy Sandborg -
A Registry for Childhood Arthritis & Rheumatology Research Alliance (CARRA)
This registry maintains a database (collection of information) about patients with pediatric rheumatic disease. Researchers intend to use the database as a tool to improve future treatments and health outcomes of Pediatric Rheumatic diseases.
Primary Investigators: Joseph Benavides and Joyce Hsu
Contact: Joyce Hsu -
Follow up for Trial of Early Aggressive Therapy of Juvenile Idiopathic Arthritis (TREAT)
This study is to observe children who participated in our prior TREAT study to see if symptoms of Juvenile Idiopathic Arthritis (JIA) are the same, better, or worse. Information about current JIA medications and side effects are also being collected and documented.
Primary Investigators: Joseph Benavides and Joyce Hsu
Contact: Joyce Hsu
